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2019年05月05日会話するＳＭＡ当事者ら 筋萎縮症の当事者が交流会「ＳＭＡサミット」で情報交換する、脊髄性筋萎縮症の当事者ら＝５日、大阪市内
商品コード: 2019050500347
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The award winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel and the laudators Brunhilde Wirth and Dr. Stephan Zierz before the presentation of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in neurological basic research for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804166
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel before the award of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in basic neurological research the two for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804331
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel before the award of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in basic neurological research the two for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804324
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel before the award of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in basic neurological research the two for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804320
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The award winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel and the laudators Brunhilde Wirth and Dr. Stephan Zierz before the presentation of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in neurological basic research for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091803944
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The award winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel and the laudators Brunhilde Wirth and Dr. Stephan Zierz before the presentation of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in neurological basic research for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804164
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel before the award of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in basic neurological research the two for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804592
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel before the award of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in basic neurological research the two for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804558
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel before the award of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in basic neurological research the two for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091805572
2019年09月12日K.J. Zülch Prize12 September 2019, North Rhine-Westphalia, Cologne: The winners The biochemist Prof. Dr. Adrian Krainer , l-r, and the neurologist Richard Finkel before the award of the K.J Zülch Prize - The K-J Zülch Prize of the Gertrud Reemtsma Foundation has been awarded since 1990 for outstanding achievements in basic neurological research the two for the development and testing of a drug for spinal muscular atrophy. Photo: Horst Galuschka/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2019091804125
2020年02月03日Raffle of SMA drug ZolgensmaILLUSTRATION - 03 February 2020, Baden-Wuerttemberg, Backnang: A ventilator stands behind a child suffering from spinal muscular atrophy (SMA). Children in Germany now have a chance to win a gene therapy for terminally ill babies.The Swiss pharmaceutical company Novartis started the raffle of a treatment with Zolgensma for 100 children on 03.02.2020. It is the most expensive drug in the world, with approximately two million euros for one dose. The therapy is for children under two years of age who suffer from SMA, which causes muscle atrophy and can lead to death in severe cases if left untreated. Photo: Sebastian Gollnow/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2020020502866
2020年02月03日Child in therapy chair03 February 2020, Baden-Wuerttemberg, Backnang: A child with spinal muscular atrophy (SMA) operates a tablet. Photo: Sebastian Gollnow/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2020020502783
2020年02月03日Teddy bear in front of child in therapy chair03 February 2020, Baden-Wuerttemberg, Backnang: A teddy bear sits in front of a child with spinal muscular atrophy (SMA) sitting in a therapy chair. Photo: Sebastian Gollnow/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2020020503100
2020年02月03日Raffle of SMA drug ZolgensmaILLUSTRATION - 03 February 2020, Baden-Wuerttemberg, Backnang: A child suffering from spinal muscular atrophy (SMA) is sitting in a therapy chair. In the foreground is a box of the drug Spinraza next to an angel sculpture with the word “Hope“. Children in Germany now have a chance to win a gene therapy for terminally ill babies.The Swiss pharmaceutical company Novartis started the raffle of a treatment with Zolgensma for 100 children on 03.02.2020. It is the most expensive drug in the world, with approximately two million euros for one dose. The therapy is for children under the age of two who suffer from SMA, which causes muscle atrophy and can lead to death in severe cases if left untreated. Photo: Sebastian Gollnow/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2020020502890
2020年02月03日Raffle of SMA drug ZolgensmaILLUSTRATION - 03 February 2020, Baden-Wuerttemberg, Backnang: A teddy bear sits in a therapy chair in front of a child suffering from spinal muscular atrophy (SMA). Children in Germany now have a chance to win a gene therapy for terminally ill babies.The Swiss pharmaceutical company Novartis started the raffle of a treatment with Zolgensma for 100 children on 03.02.2020. It is the most expensive drug in the world, with approximately two million euros for one dose. The therapy is for children under the age of two who suffer from SMA, which causes muscle atrophy and can lead to death in severe cases if left untreated. Photo: Sebastian Gollnow/dpa、クレジット：ＤＰＡ／共同通信イメージズ
商品コード: 2020020502572
00:55.702021年03月09日「新華社」難病女性詩人、詩歌で輝かす命浙江省温州市中国浙江省温州市文成県に住む包珍妮（ほう・ちんじ）さんは、幼少期に筋肉が少しずつ衰える難病「脊髄性筋萎縮症（ＳＭＡ）」と診断され、医師からも「４歳以上は生きられない」と宣告されたが、自らの命と力比べを続け今年で２０年目になる。同症の患者は体がスポンジのように柔らかくなるため「スポンジベビー」と呼ばれるが、包さんは唯一動かすことのできる右手の親指を使い、これまでに１００編以上の詩を書いてきた。父親によると、包さんは現在、人工呼吸器を２４時間装着した状態で生命を維持している。詩を書く時は、仮想マウスとしてパソコンに接続したスマートフォンを右手の親指で使い、目の動きでパソコンを操作する。包さんはこれまで１００編以上の詩や歌詞を創作しただけでなく、哲学や美学、人文学をオンラインで学んだ。英語や日本語、フランス語、スペイン語も独学で習得し、原書も一人で読めるという。２０１８年には詩歌作品集「予生」を出版している。（記者／鄭夢雨、魏董華、黄筱、王思遠） ＝配信日： ２０２１（令和３）年３月９日、クレジット：新華社／共同通信イメージズ
商品コード: 2021030901286
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502790
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - JUNE 13, 2021 - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502760
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502778
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - JUNE 13, 2021 - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502708
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - JUNE 13, 2021 - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502875
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
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2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - JUNE 13, 2021 - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
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2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502853
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - JUNE 13, 2021 - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502733
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502806
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502836
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - JUNE 13, 2021 - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502900
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - JUNE 13, 2021 - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502800
2021年06月13日Charity run organized in UzhhorodJune 13, 2021, Uzhhorod, Ukraine: UZHHOROD, UKRAINE - Participants of the Run for Pavlik charity race in support of Pavlo Motychko from Synevir who suffers from spinal muscular atrophy, Uzhhorod, western Ukraine (Credit Image: © Serhii Hudak/Ukrinform via ZUMA Wire)、クレジット：©Ｓｅｒｈｉｉ Ｈｕｄａｋ／Ｕｋｒｉｎｆｏｒｍ ｖｉａ ＺＵＭＡ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021061502709
2021年12月08日Florida News - December 8, 2021December 8, 2021, St. Petersburg, Florida, USA: Melissa Greene, 37, and her five-year-old daughter, Riley Reichelderfer who has spinal muscular atrophy type one, a genetic neuromuscular disease. Greene hopes to be able to fix the truck she uses to transport Riley and her other children and buy presents for Rileyââ¬â¢s nurses and therapists, at home Wednesday, Dec. 8, 2021 in St. Petersburg. (Credit Image: © Martha Asencio-Rhine/Tampa Bay Times via ZUMA Press Wire)、クレジット：©Ｍａｒｔｈａ Ａｓｅｎｃｉｏ－Ｒｈｉｎｅ／Ｔａｍｐａ Ｂａｙ Ｔｉｍｅｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021121008400
2021年12月08日Florida News - December 8, 2021December 8, 2021, St. Petersburg, Florida, USA: Riley Reichelderfer holds up a toy while sitting up in bed. Riley has spinal muscular atrophy type one, a genetic neuromuscular disease and her mom, Melissa Greene takes care of her with the help of nurses and therapists. For the Holiday Hopes series, Wednesday, Dec. 8, 2021 in St. Petersburg. (Credit Image: © Martha Asencio-Rhine/Tampa Bay Times via ZUMA Press Wire)、クレジット：©Ｍａｒｔｈａ Ａｓｅｎｃｉｏ－Ｒｈｉｎｅ／Ｔａｍｐａ Ｂａｙ Ｔｉｍｅｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021121007485
2021年12月08日Florida News - December 8, 2021December 8, 2021, St. Petersburg, Florida, USA: Riley Reichelderfer uses a communication device to say she wants to play. Riley has spinal muscular atrophy type one, a genetic neuromuscular disease and her mom, Melissa Greene takes care of her with the help of nurses and therapists. For the Holiday Hopes series, Wednesday, Dec. 8, 2021 in St. Petersburg. (Credit Image: © Martha Asencio-Rhine/Tampa Bay Times via ZUMA Press Wire)、クレジット：©Ｍａｒｔｈａ Ａｓｅｎｃｉｏ－Ｒｈｉｎｅ／Ｔａｍｐａ Ｂａｙ Ｔｉｍｅｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021121007500
2021年12月08日Florida News - December 8, 2021December 8, 2021, St. Petersburg, Florida, USA: Mobility equipment is stored with childrenââ¬â¢s books and toys at Melissa Greeneââ¬â¢s home for her five-year-old daughter, Riley who has spinal muscular atrophy type one, a genetic neuromuscular disease, Wednesday, Dec. 8, 2021 in St. Petersburg. (Credit Image: © Martha Asencio-Rhine/Tampa Bay Times via ZUMA Press Wire)、クレジット：©Ｍａｒｔｈａ Ａｓｅｎｃｉｏ－Ｒｈｉｎｅ／Ｔａｍｐａ Ｂａｙ Ｔｉｍｅｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021121007514
2021年12月08日Florida News - December 8, 2021December 8, 2021, St. Petersburg, Florida, USA: Melissa Greene, 37, and her five-year-old daughter, Riley Reichelderfer who has spinal muscular atrophy type one, a genetic neuromuscular disease. Greene hopes to be able to fix the truck she uses to transport Riley and her other children and buy presents for Rileyââ¬â¢s nurses and therapists, at home Wednesday, Dec. 8, 2021 in St. Petersburg. (Credit Image: © Martha Asencio-Rhine/Tampa Bay Times via ZUMA Press Wire)、クレジット：©Ｍａｒｔｈａ Ａｓｅｎｃｉｏ－Ｒｈｉｎｅ／Ｔａｍｐａ Ｂａｙ Ｔｉｍｅｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021121006974
2021年12月08日Florida News - December 8, 2021December 8, 2021, St. Petersburg, Florida, USA: Melissa Greene, 37, and her five-year-old daughter, Riley Reichelderfer who has spinal muscular atrophy type one, a genetic neuromuscular disease. Greene hopes to be able to fix the truck she uses to transport Riley and her other children and buy presents for Rileyââ¬â¢s nurses and therapists, at home Wednesday, Dec. 8, 2021 in St. Petersburg. (Credit Image: © Martha Asencio-Rhine/Tampa Bay Times via ZUMA Press Wire)、クレジット：©Ｍａｒｔｈａ Ａｓｅｎｃｉｏ－Ｒｈｉｎｅ／Ｔａｍｐａ Ｂａｙ Ｔｉｍｅｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2021121007076
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- Medical workers prepare to inject Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy (SMA) at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010404985
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- Medical workers encourage a 4-year-old child diagnosed with spinal muscular atrophy (SMA) after the injection of Spinraza at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010405277
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- Medical workers encourage a 4-year-old child diagnosed with spinal muscular atrophy (SMA) after the injection of Spinraza at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010405232
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- Medical workers prepare to inject Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy (SMA) at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010404841
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- Medical workers prepare to inject Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy (SMA) at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010405005
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- A medical worker injects Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy (SMA) at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010404811
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- Medical workers prepare to inject Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy (SMA) at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010404657
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- Medical workers prepare to inject Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy (SMA) at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010404658
2022年01月01日CHINA-SHANDONG-RARE DISEASE-MEDICINE (CN)(220101) -- ZAOZHUANG, Jan. 1, 2022 (Xinhua) -- A medical worker injects Spinraza to a 4-year-old child diagnosed with spinal muscular atrophy (SMA) at a hospital in Zaozhuang, east China‘s Shandong Province, Jan. 1, 2022. China is striving to improve the diagnosis and treatment of rare diseases. Recently, a tear-jerking video showing how a national health insurance negotiator helped cut down the bidding price of Spinraza from over 53,680 yuan (8,422 U.S. dollars) per dose to 33,000 yuan went viral online and was lauded by netizens. Spinraza, a medicine for spinal muscular atrophy (SMA), was once priced at a whopping 700,000 yuan. Seven rare-disease medicines were included in the country‘s medicare reimbursement list in 2021, with an average price reduction of 65 percent. (Xinhua/Guo Xulei)、クレジット：新華社／共同通信イメージズ
商品コード: 2022010405098
2022年01月06日（１）中国、高額医薬品の医療保険収載で希少疾患の治療推進１日、ヌシネルセンナトリウムを手に持つ山東省棗荘婦幼保健院の看護師。中国国家医療保障局が２１年１２月３日発表した最新の国家医療保険適用医薬品リストに、脊髄性筋萎縮症の治療薬であるヌシネルセンナトリウムが収載され、今年１月１日から１瓶当たり約７０万元（１元＝約１８円）から３万３千元に引き下げられた。（済南＝新華社記者／邵魯文）＝ 配信日： ２０２２（令和４）年１月６日、クレジット：新華社／共同通信イメージズ
商品コード: 2022010608182
2022年01月06日（４）中国、高額医薬品の医療保険収載で希少疾患の治療推進１日、山東省棗荘婦幼保健院の小児集中治療室で、ヌシネルセンナトリウムの注射を終えた幼児を励ます医療従事者。中国国家医療保障局が２１年１２月３日発表した最新の国家医療保険適用医薬品リストに、脊髄性筋萎縮症の治療薬であるヌシネルセンナトリウムが収載され、今年１月１日から１瓶当たり約７０万元（１元＝約１８円）から３万３千元に引き下げられた。（済南＝新華社記者／郭緒雷）＝ 配信日： ２０２２（令和４）年１月６日、クレジット：新華社／共同通信イメージズ
商品コード: 2022010608212
2022年01月06日（３）中国、高額医薬品の医療保険収載で希少疾患の治療推進１日、棗荘婦幼保健院の小児集中治療室で、ヌシネルセンナトリウムの注射を受ける脊髄性筋萎縮症の幼児。中国国家医療保障局が２１年１２月３日発表した最新の国家医療保険適用医薬品リストに、脊髄性筋萎縮症の治療薬であるヌシネルセンナトリウムが収載され、今年１月１日から１瓶当たり約７０万元（１元＝約１８円）から３万３千元に引き下げられた。（済南＝新華社記者／郭緒雷）＝ 配信日： ２０２２（令和４）年１月６日、クレジット：新華社／共同通信イメージズ
商品コード: 2022010608198
2022年01月06日（２）中国、高額医薬品の医療保険収載で希少疾患の治療推進１日、棗荘婦幼保健院の小児集中治療室で、脊髄性筋萎縮症の幼児にヌシネルセンナトリウムを注射する医療従事者。中国国家医療保障局が２１年１２月３日発表した最新の国家医療保険適用医薬品リストに、脊髄性筋萎縮症の治療薬であるヌシネルセンナトリウムが収載され、今年１月１日から１瓶当たり約７０万元（１元＝約１８円）から３万３千元に引き下げられた。（済南＝新華社記者／郭緒雷）＝ 配信日： ２０２２（令和４）年１月６日、クレジット：新華社／共同通信イメージズ
商品コード: 2022010608202
2022年01月29日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 29, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105580
2022年01月29日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 29, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105549
2022年01月29日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 29, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105578
2022年01月29日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 29, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105589
2022年01月29日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 29, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105596
2022年01月30日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 30, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105674
2022年01月30日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 30, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105466
2022年01月31日2.260.00 million dollars donation raised for SMA Patient BabyJanuary 31, 2022, Ankara, Turkey: The campaign launched for the baby Zehra Meva, the 21-month-old daughter of Ankara Fire Department personnel Musa Kalñnsazlñoßlu, who has Spinal Muscular Atrophy (SMA) muscle disease, has ended. The family, who came together with about 300 volunteers and firefighters who supported the campaign at the Ankara Fire Department Central Station, released the colorful balloons into the sky. A total of 30 million 250 thousand TL (nearly 2,260.000 US dollars) donations were collected for the treatment of Zehra Meva baby. (Credit Image: © Abb/Depo Photos via ZUMA Press Wire)、クレジット：©Ａｂｂ／Ｄｅｐｏ Ｐｈｏｔｏｓ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ ※Ｔｕｒｋｅｙ Ｒｉｇｈｔｓ Ｏｕｔ
商品コード: 2022020105591
2022年07月20日Hong Kong News - July 20, 2022July 20, 2022, HONG KONG, CHINA: Joyce Lam Yuk-shan, 19, a student from Hong Kong Red Cross Princess Alexandra School suffered from Spinal muscular atrophy but still managed to attain 23 marks for 5 subjects. 20JUL22 SCMP/ Yanni Chow (Credit Image: © Yanni Chow/South China Morning Post via ZUMA Press Wire)、クレジット：©Ｙａｎｎｉ Ｃｈｏｗ／Ｓｏｕｔｈ Ｃｈｉｎａ Ｍｏｒｎｉｎｇ Ｐｏｓｔ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2022072311598
2022年07月20日Hong Kong News - July 20, 2022July 20, 2022, HONG KONG, CHINA: Joyce Lam Yuk-shan, 19, a student from Hong Kong Red Cross Princess Alexandra School suffered from Spinal muscular atrophy but still managed to attain 23 marks for 5 subjects. 20JUL22 SCMP/ Yanni Chow (Credit Image: © Yanni Chow/South China Morning Post via ZUMA Press Wire)、クレジット：©Ｙａｎｎｉ Ｃｈｏｗ／Ｓｏｕｔｈ Ｃｈｉｎａ Ｍｏｒｎｉｎｇ Ｐｏｓｔ ｖｉａ ＺＵＭＡ Ｐｒｅｓｓ Ｗｉｒｅ／共同通信イメージズ
商品コード: 2022072311888
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